Government Resources
Organizations such as Autism Speaks believe the federal government must play a significant role in research into the cause, treatment, and ultimately a cure for autism, provide relief to families through treatment, support services and best practices identification, and extend financial relief through autism insurance mandates and directed tax relief.
Some government agencies do provide informational pamphlets and booklets for families. Following is a list of government fact sheets (and web sites in which fact sheets can be downloaded) that provide assistance to families dealing with an individual on the autistic spectrum:
National Institute of Mental Health – Autism Spectrum Disorders (Pervasive Developmental Disorders)
http://www.nimh.nih.gov/health/publications/autism/summary.shtml
A detailed booklet that describes Autism symptoms, causes, and treatments, with information on getting help and coping. Date: 2004 (rev) -
National Institute of Child Health and Human Development – Autism and Genes
http://www.nichd.nih.gov/publications/pubs_details.cfm?from=&pubs_id=4123
This 12-page fact sheet explains what is known about ASDs and genes and describes some NICHD-supported research on this topic for parents and families. Date: 2005
National Institute of Child Health and Human Development – Autism Overview: What We Know
http://www.nichd.nih.gov/publications/pubs_details.cfm?from=&pubs_id=3903
This 16-page fact sheet for parents and families explains what is known about ASDs, their symptoms, their causes, their diagnoses, and some research supported by the NICHD on ASDs. Date: 2005
National Institute of Child Health and Human Development – Autism and the MMR Vaccine--Autism Research at the NICHD http://www.nichd.nih.gov/publications/pubs_details.cfm?from=&pubs_id=219 - This eight-page fact sheet for parents and families explains what is known about ASDs and vaccines and describes some NICHD-supported research on this topic. Date: 2001
National Institute of Child Health and Human Development – Autism Questions and Answers for Health Care Professionals- Autism Research at the NICHD
http://www.nichd.nih.gov/publications/pubs_details.cfm?from=&pubs_id=212
This 12-page fact sheet for health care professionals and those with medical backgrounds answers common questions about ASDs, their causes, their symptoms, their treatments, and NICHD-supported research on ASDs and provides references for additional information. Date: 2001
New York State Education Department - Individuals with Disabilities Education Improvement Act 2004
http://www.vesid.nysed.gov/specialed/idea/home.html
Information about and the text for the Individuals with Disabilities Education Improvement Act, which reauthorized the Individuals with Disabilities Education Act (IDEA), on December 3, 2004.
New York State Education Department – Information for Parents of Preschool Students with Disabilities ages 3-5 http://www.vesid.nysed.gov/specialed/publications/preschool/brochure.htm
Information about The New York State Education Department (SED), Office of Vocational and Educational Services for Individuals with Disabilities (VESID) that oversees a statewide preschool special education program with school districts, municipalities, approved providers and parents. Evaluations and specially planned individual or group instructional services or programs are provided to eligible children who have a disability that affects their learning. Funding for these special education programs and services is provided by municipalities and the State.
Centers for Disease Control and Prevention – Autism Spectrum Disorders Among Children
http://www.cdc.gov/ncbddd/dd/documents/autism_factsheet020306.pdf
A fact sheet with information on the CDC’s activities regarding autism.
National Research Council – Educating Children with Autism
http://books.nap.edu/openbook.php?record_id=10017&page=R1 – This book sponsored by the US Department of Education is filled with recommendations that may be used to obtain an appropriate educational program for your child. It can be downloaded one page at a time.
Currently, legislation on the agenda in Washington includes:
- Support of the Expanding the Promise of Individuals with Autism Act (EPIAA), a bill designed to provide demonstration grants for autism treatment and services. This landmark legislation would dramatically expand federal funding for lifelong services for individuals with autism. It was introduced in March by Senator Hillary Rodham Clinton (D-NY) and Senator Wayne Allard (R-CO).
- Funding and implementing the Combating Autism Act , passed in 2006. This Act authorizes expanded activities related to autism research, prevention, and treatment through FY 2011.
- Supporting legislation to be introduced shortly to create a tax preferred savings account for families of children with developmental disabilities.
- Supporting an increase to $15 million for autism research in the Fiscal 2008 Department of Defense Appropriations bill.
- Establishing educational outreach to the policy staffs of all major party candidates for President in 2008.
- ADA Restoration ACT of 2007 - Congress made a major contribution to the lives of people with disabilities by enacting the Americans with Disabilities Act of 1990 (ADA). This law prohibits discrimination against people with disabilities in employment and provides access to state and local government services, public accommodations, transportation and telecommunications. However, federal courts have interpreted the ADA narrowly. As a result of these rulings, courts have denied ADA protection to millions of people that Congress intended for the law to cover. Millions of citizens have been left vulnerable to a narrow interpretation of the law, and people with disorders and disabilities such as autism, epilepsy, muscular dystrophy and those who use hearing aids may not be “disabled enough” to be protected under the ADA.
Useful government web sites regarding autism spectrum disorders include:
Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/ncbddd/autism/index.htm
The CDC’s National Center on Birth Defects and Developmental Disabilities is a very good resource on autism. These pages have a number of resources that are useful, including a page describing autism, updated list of ASD projects at CDC, list of governmental projects at other federal and state agencies, resources, a great kids’ page (geared to children between 4th and 6th grade) for teaching about ASD, and an excellent introductory section entitled “About Autism.”
Interagency Autism Coordinating Committee (IACC)
http://www.nimh.nih.gov/autismiacc/index.cfm
This committee coordinates autism research and other efforts within the Department of Health and Human Services. The National Institute of Mental Health at the National Institutes of Health has been designated the lead for this activity. This page includes links to numerous reports of the activities of the committee and other government agencies.
National Institute of Mental Health (NIMH)
http://www.nimh.nih.gov/healthinformation/autismmenu.cfm
An excellent basic source of information on ASD, NIMH gives a nice overview of the condition, signs and symptoms, treatment options, and local services.
National Institute of Child Health and Human Development (NICHD)
http://www.nichd.nih.gov/health/topics/asd.cfm
An excellent source of information on basic facts about autism, treatment, research, resources and publications, clinical trials, news, etc.
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